Living with a rare disease: how good-humoured Nikki appreciates the little things in life

By Megan Levy
Updated February 28 2013 - 3:08pm, first published 2:59pm
Positive outlook ... Nikki Howe.
Positive outlook ... Nikki Howe.
Nikki Howe ... she suffers from a rare skin condition called EB.
Nikki Howe ... she suffers from a rare skin condition called EB.

It's described as the "worst disease you've never heard of".

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